Foundation Update

The National Lipid Association and the Foundation are thankful once again for another successful year of meetings and fundraising. But we still have much work to do.

If you are onsite at the Fall CLU in Amelia Island, make sure to purchase a ticket to the Foundation Event for an evening of miniature golf on Aug. 27 from 6:30–8:30 p.m. Engage your peers in a friendly competition through 18 holes on the Heron Cove Adventure Golf course located at the Omni Amelia Island Plantation Resort. The winning team will take home prizes and bragging rights, and a portion of your ticket will be donated to the Foundation. For more information, stop by the registration desk onsite.

During the Scientific Sessions in New Orleans last May, more than 80 people attended the event “A Night at the Museum.” The night started off with cocktails, where attendees had a chance to mingle and view the exhibit “Road to Berlin,” which had been opened only for Foundation event guests. After the cocktail hour and exhibit viewing, everyone gathered for dinner and a live showing of the Johnny Cash Experience. It was a fun night, and another successful event for the Foundation.

In addition, the Foundation will once again launch an awareness campaign to coincide with National Cholesterol Education Month this September. The objective of the 2016 Rare Disease Education and Awareness Campaign is to establish a national patient outreach program that will enable the Foundation to address the medical community and educate both healthcare professionals and patients with the latest knowledge and information regarding rare lipid disorders.

Until now, publicly available information has tended to focus on low-density lipoprotein (LDL) cholesterol as the key element of cardiovascular health risk Rare lipid disorders significantly affect individuals and their families. We hope to improve the physician-patient relationship by using information and education to increase patient awareness of disorders such as familial chlyomicronemia syndrome (FCS), lysosomal acid lipase deficiency (LAL-D), lipodystrophy, and heterozygous and homozygous familial hypercholesterolemia (HeFH and HoFH, respectively).

This national education program intends to inform patients and healthcare professionals about ways to improve the identification and management of these rare lipid disorders and to better the overall quality of care delivered to patients who might be identified as having a rare lipid disorder. Ultimately, the best level of healthcare is achieved when consumers are better educated and have a deeper grasp of the essential issues regarding their health and plans for treatment.

Another way to support the Foundation is to continue shopping at the newly opened NLA store. All proceeds will be donated to the Foundation. The store offers shirts, polos, and many other items branded with the NLA logo. Show your support of the NLA and visit the store online at logosoftwear.com/ shareandsell/?store=nlastore.

As always, thank you for your continued support to the Foundation and to another successful year!